A year or two ago a very generous person gave me a generator and had an electrician set it up for me, for this gift I am forever grateful. The only problem was that there wasn’t enough petrol to run it for long. I now have a spare can of petrol for just such an emergency.
Then a year and a half ago friends and family got together to raise funds for the purchase of a special requirements wheelchair which had to be imported for me. This need was met by donations from friends, family, blog friends and anonymous donors for which I am again truly grateful.
I thank God daily for people like my unknown benefactors ,family and friends who have helped me to cope with this horrible disease.
Today I realised again, how much I, as a disabled person, rely on the uninterrupted supply of electricity to keep me serviced, sane and occupied.
Eishkom got my blood pressure to sky rocket for 3 hours last night before a semblance of normality descended on my life once again, and then again for an hour just after I had reset all the clocks and DSTV, computer etc.
Let me explain how I would be in big trouble if there were extensive power cuts. Firstly with no power comes cold water, so my bed bath would be very unpleasant, then in order for my carer to get me out of my bed and into my wheelchair we make use of a hoist. Both of which require batteries to be kept charged. Then to be hoisted onto a toilet which would spray water and blow dry my behind if there was power. Electric toothbrush and shaver also need charging before moving on to the kitchen for breakfast where all the appliances are rendered useless. No breakfast!
Not being able to use my computer is the end of my world, no music, no TV no sounds make me realize how deaf, blind and disabled people feel lost and alone when things we rely on, go on the blink. The feelings of frustration and unhappiness are very strong at these times.
I use wordpress to blog, specifically because of the like and reblog buttons which allow me to show friends that I have visited their blogs, because, with me being obliged to use a point and click on screen keyboard, I don’t always have the energy to comment on every post. If you see a like on your post from me it means I have read and like your post and am maybe not strong enough to comment that day.
My Blogspot friends and those with personal blog .com accounts that don’t have a like facility be aware that I still read your posts but maybe don’t comment for reasons as I’ve explained.
Being disabled my arms aren’t strong enough to get out the LP gas cylinder, pot and other paraphernalia in order to boil water or make porridge etc. Forget about tummy rumbling and do something to keep me occupied. No radio, TV or computer to keep me occupied and my cell phone needs charging, I can’t read because all my books are on my computer and in any case my hands are too weak to hold a book or turn the pages, so I sit in silence waiting for my life to get back to normal once the power comes back on.
Oh how this disease really hits home when my normality is disrupted. There is often no alternative that I can turn to.